, and start to immediately get screened for it and find out that they have diabetes much earlier. that can save many dollars in health care costs, because you can treat things before they become bad. >> reporter: scientists say that for diseases diagnosed early and then treated, sequencing can indeed save lives. but should doctors tell parents when tests show that their child will eventually fall victim to early adult onset disease like alzheimer's, for which there is no known cure? >> and we have already seen some cases where we find some things that are damaging that tell you that you're very, very high risk for an adult onset disorder that's going to be bad and there's no treatment, so we can't really think of a reason to give that information to people. and i think right now we are trying to learn what should we be giving and what shouldn't we be giving, because our main goal is not to cause any harm or additional stress to families. >> reporter: the hunter family in new jersey wanted any information they could get about tir 14-year-old daughter, amanda. she suffers from crohn